Friday, October 8, 2010

Hope

A few weeks ago, I watched the movie DEAR JOHN not knowing that it had anything to do with Autism (because, I usually like to be prepared for that). Well it wasn't the little Autistic boy that upset me, it was the adult with Autism that really struck an emotion with me. I cried like a baby through most of the movie. Thinking about it all week, I realized that when I think of Will as an adult, I don't think of him having Autism. It is kind of like this is just something that we are having to go through with him as a child. With all the biomedical treatments that we are doing with Will there is hope. There is a lot of frustration too! Do we have him on the right supplements, how to get all the supplements in him each day, the diet (ugh), etc. But the reality of it is that we might have to deal with this for our whole life. That he may struggle. But I will remain hopeful.

This last two weeks Will has had very bad days and very good days. For a few days last week he was so out of sorts. He was violent, didn't listen, got upset easily, etc. Then it turned around and he had some great days where he behaved, used good manners, and seemed generally happier. Did we do something different? Did he have a problem from the weather? What?? I couldn't tell you but the questions drive me crazy sometimes. Trying to figure out what we did right or what we did wrong.

Tonight, Will has been talking up a storm. He has been using sentences all night. "Daddy, I made a boat at school, too" or "Gmom, open this door, NOW!" (he thinks since we say it, he can too). The speech improvement isn't what makes me the happiest, it's the sharing of his day and the conversations that he is having. I LOVE IT!!

Tuesday, September 21, 2010

Dr. Bob Sears

Sunday, my friend Lynn and I went to see Dr. Bob Sears at a TACA event. He was on his book tour for his book The Autism Book. So glad I went, because not only did I learn so much but I got a renewed enthusiasm for biomedical. Not that we have stopped the treatments for Will but you get complacent, and it is so important to do as much as you can when they are still so young (Will just turned 4 in July). I have ordered my book from Amazon and can't wait for the UPS guy to get here! Will was on most of the items that Dr. Sears thinks is essential but there were a few that I would like to try. I need to talk to Will's DAN! doctor before we get started but I am going to read the book first.

Another thing that I was excited about from the meeting was a new product (or new to me) that Nordic Naturals has out. We have had the hardest time with getting Will to take Fish Oil. The liquid and most of the gummies he won't touch. This product is a drink or an effervescent, I put it in his bottle that he has for when he wakes up during the night (don't judge me! :) and it is sweetened with stevia so it is not bad for his teeth. We have tried it the last two nights and he drank it all up!!

Saturday, September 4, 2010

Lots of Changes


Lots of changes going on. Will is now going to Pharr Elementary school Monday-Friday from 8:30-1:15. They tried to talk me into all day (which is just an hour and 15 min more but I held my ground. I think it is just too long a day to start out with since he hasn't had any preschool yet. So first day of school and Will wakes up at 4am. Like awake awake. I was really worried that he was going to have a bad day. Miss. Whitney his teacher said that he did great! He did cry a few times but overall a good day. Here is a picture of Will in the car on the way home.

The next morning I woke him up and told him it was time for school and he said "Yeah, school!" so I guess he likes it! He even got out with the other kids at the carpool are the second day. What a big sweet boy he is becoming! Ms. Whitney said he even learned how to spell his name! (Mommy has been working on that but apparently didn't know the cool song that was the key to learning!)
A proud Mommy and Daddy! (and Grandma!)

Friday, July 30, 2010

What we are eating

I have not posted in quite a while and I had a friend ask what Will eats to help out her son so I
figured I would blog about what we are eating right now. We are really happy because there are some really good Gluten Free/Casein Free foods coming onto the market that make our lives
much easier and limits things that Will has to miss out on.

Probably the most exciting product is the new bread. It is actually very similar to regular bread. Not that heavy bread that we are used to that you need to toast to be able to eat. My son Taylor even had a grilled cheese (he is not gf/cf) on the bread yesterday and said it was good! Two
brands that we are eating right now are Udi and Nature's Own. I found the Udi at Ingles and the
Nature's Own at Kroger.

Will has become really picky in his old age (Just turned 4, I can't believe it!!) and so once we find some stuff he will eat then we stock up. He loves these Chicken Apple Sausages (the ones without the casings) Whole foods makes a great one or you can get these Applegate Farms at Kroger. Also, the chicken nuggets.















These snap peas are good for on the go (make sure you don't get the ones with cheese!)

These cookies are good and you can get them at Amazon for a good price!
Cereal choices- Rice Krispies and Mother Bumpers (really?? You couldn't have come up with a better name then that? )
So, those are our current favorite products that are GF/CF. Enjoy!


Sunday, May 9, 2010

What happened this week!

I haven't had time to really blog lately so I figured I would just post part of the journal I keep for Will...

5.9.10

Today is Mothers day and it really makes me think about how much I love being a mom. As hard as it is sometimes, it is even more wonderful. You have such a great sense of humor. You were out in playing in the pool this week (like I can get you out of there) and you were swimming under water, which you taught yourself, and I was clapping and saying “great job Will!” and you looked at me and started bowing to the right and left saying “ Thank you, Thank you, Thank you!” It was so freaking cute! Daddy made you a house out of our new dishwasher box and it had a door and a window and you were loving playing in that, pretending it was Will’s house.

A big thing that happened is you are showing empathy more and more. You were watching some strange movie called “5 kids and It” and at the end the boy is sad because his daddy is off to war, etc and you started crying!!! You felt sad that the boy was sad! That is huge and we couldn’t be more thrilled!! You are such a joy!


Friday, March 19, 2010

This one's for you Lynn!

As soon as you become a mom you know a new type of guilt that, even if you are Catholic, you have never known before. Well being the mom of a special needs child you have even more. "Did I do anything to cause this?", "am I making the right decisions?", etc. Often I am reading on facebook about how a mom is "making a special St. Patricks day breakfast for their kids" or "making crafts together", etc. Things like this, make me feel inadequate as a mom. Stupid, I know. I am not insecure at much in my life, except this.
And then.... We have had a hell week here with Will going through Yeast die off (because of the Nystatin). For a few days he has been uncontrollable, happy one second and totally freaking out the next. Yesterday was the worst. After hours of on and off meltdowns, I was sitting on the couch holding him tight so he couldn't bite me or scratch me and just whispering "calm down" in his ear. On the verge of tears and then I had this thought, I might not be that mom that has it all together, but I bet some of those Martha Stewart types, that make everything look so easy, couldn't handle days like these. And I felt better.

Monday, March 8, 2010

Dentist Success~Driving home...not so much!


Will had his dental cleaning appointment this last week. I made Kevin come with me because in the past it has been a very difficult appointment and usually I have to hold him down screaming while they look in his mouth. Not this time!! He climbed up in the chair, laid down, and even tried to turn on the light for the dentist. In past appointments because it has been so difficult the dentist just used a regular toothbrush and glance trying not to get bit! Well the hygienist used the regular spinning toothbrush, flossed, and used fluoride and Will sat patiently for the entire thing!! It was amazing and great!! I was so proud of my little guy and so was his Daddy!!
So, it takes us about 1.15 hour to get to the dentist because it is in Athens so I decided to sit in the backseat with Will to play on the way home. I guess he had behaved for long enough and he tried to hit me/scratch me the majority of the way home. I guess he had too much stimulation or something. I was still super proud of him.

Friday, February 19, 2010

What would we do without Grandma??

This is a picture of Grandma with Will's cousin Miles.
Will is extremely lucky to have his Grandma living with us, or Gigi as he calls her. Will stays with her while Kevin and I work on Mondays and Wednesdays and she is our lifesaver!! As many of you know I am very overprotective when it comes to Will and I only trust a couple of people to care for him so he is lucky to have a grandma that gets to spoil him rotten on a daily basis (no matter how much Kevin and I protest, Lol). They have such a great relationship and he learns so much from her! Grandma has so much more patience than most people and that is definitely a plus living with Will! They play the sillies game and I can often hear them somewhere in the house just giggling. Kevin and I are so happy that Will has someone who loves him so much and that we feel comfortable leaving him with when we need to get away for some adult conversation! Will loves her so much! Truly, I don't know what we would do without her! Thank God for Grandma!

Thursday, February 18, 2010

A day in the life...

This is just a glimpse at what you can find if you leave Will alone for just a second or any three year old for that matter! We had received a box the day before and had neglected to take it outside, well the next morning Will (who loves boxes by the way, because it often means presents) took it upon himself to empty that box all over the house. He had a blast playing in them, you couldn't help but laugh and just watch with a huge smile on your face. That is until it was time to clean them up. Now I don't know if any of you have had the pleasure of cleaning up those packing peanuts in the winter with all of the static but it was an all day event!! I am certain that we will not forget to take the box out to the trash next time we get a package!!

Monday, February 15, 2010

New Title

I changed the title of our blog. First off because I am not keeping track of what Will eats anymore. He is still on GF/CF diet most of the time (when he isn't grabbing a whole pack of hot dog buns and hiding under the table) and his food doesn't differ that often so no need to keep track in that way. I will still add our "favorite foods" to the list on the right as we try new things.

Secondly, Kevin and I watched Temple Grandin last night and that is what Temple's mom had said to one of her teachers', that Temple was "different, but not less" and that really touched Kevin and I. It was an amazing movie, so touching and informative. It is playing on HBO right now and I recommend watching it.

So often, people think that disabled or special needs people are less and don't deserve their respect or even their attention and that is so wrong! Will is such a great, sweet, fabulous kid and is definitely not less, just a little different. If anything, he is so much more!

Monday, February 1, 2010

On the Move!!

Well we moved mid December to Snellville, GA! It is a great OLD (35 years old!) house but has so much character. It really screams KEVIN more than me but I do love it as well. It is 3 bedroom ranch with a sunroom and a huge playroom for Will. It also has a detached garage and 2 story barn for Kevin and a full sand volleyball court out back!! We haven't unpacked all the boxes yet but it is feeling more and more like home every day.

Will had a hard time with the transition but it didn't last too long. With the move and with Christmas we gave him a break from his GF/CF diet and I really couldn't tell that big of a difference besides his eczema has gotten really bad. But we are ready to get back into gear to see if that clears it up.

He actually has been talking really well lately. Some days he doesn't talk as much as others, and he doesn't always answer you but overall he is asking questions and interacting. It is so wonderful to hear him talk and even sing!

Will is also on the move lately! He has been attempting to "escape" as much as he can in the new house. We haven't gotten a fence up in the back yard and he figured out in a big hurry how to unlock the sliding glass door. Uh-Oh!! You can't turn your head for a second because he is either trying to get outside or dumping something out. He even pushed a chair up to one of the windows in the sunroom and climbed out!! Of course, Grandma was watching him and Kevin grabbed him while he was in the yard but what a scare!!

So a lot of changes lately, and besides still working on the behavior issues, Will has come such a long way and I am so proud of him!!

I love my little pie!