Sunday, January 4, 2009

The joy of Uh-Oh, Chelation update, ATEC score, and oh more teeth problems.

When Will was just learning to talk, before regression, I couldn't wait to hear "uh-oh". I actually used to always say "uh-oh, spaghetti-O" because I thought it would be really cute to hear him say that. Well, it didn't happen. Uh-Oh was not one of his words that he used before he lost them all.
To my absolute delight since we started chelation Will has been using "uh-oh" all the time!! In the morning when he realizes that he doesn't have his two favorite cars (Lightning McQueen and Chick Hicks) he looks at me and says "uh-oh" in the cutest little voice imaginable. It is such a great way to start my day!
Chelation is a super pain in the butt. It is 5 days on/5days off of putting a DMSA suppository up his little bootie. I HATE it! We would use the pills but they are not as effective, taste awful, and if he doesn't want to eat then that creates a problem. They cost around $150 for 10 pills so we pretty much need to make sure they get into his system. I wait until he is sleeping and it usually wakes him up but will go right back to sleep. The following day he is super-pooper. I'm talking about 6 poops the first day and the next few days 3+. (Sorry about the TMI but mom's of kids going through Chelation like to know what to expect) He also is getting the Metal Free every night as well as all his other supplements. But if it helps him get all these heavy metals out of his system then it is worth it. We will continue this regimen and then re-test him for heavy metals and see where to go from there.

* My son likes to sit in the dryer, it totally freaks Grandma out!

On a very happy note Will's ATEC score (which stands for Autism Treatment Evaluation Checklist available on the Autism Research Institute website)has gone from a 87 to a 68 (the lower the better) since we started biomedical treatment with Dr. Sloan. The ATEC is a one-page form designed to be completed by parents, teachers, or caretakers. It consists of 4 subtests: I. Speech/Language Communication (14 items); II. Sociability (20 items); III. Sensory/ Cognitive Awareness (18 items); and IV. Health/Physical/Behavior (25 items).
Mind you this is without any ABA and just beginning Floortime Therapy. Also, a little bit of speech and special instruction. We are true believers of Biomedical and now have seen it work first hand.
On an unhappy note, a few minutes ago Will was chewing on something and sure enough it was the crown that we just had replaced last Monday! ARGH!! Not sure if they are going to try to put a third one on or not, all I know is that it will probably cost a lot of money.
So, good and bad, that is what is up with us this week.

1 comment:

  1. Ahh, the DMSA up the poop hole. Mine HATE it, too. I think they're waiting for it every time I change their diapers. Fortuantely, it doesn't seem to increase the poops in my guys. Awesome ATEC score. Chelation does work! We're seeing it first-hand!