Saturday, January 10, 2009

Heavens Very Special Child

HEAVENS VERY SPECIAL CHILD
A meeting was held, quite far from Earth!
It's time again, for another birth.
Said the Angels, to the Lord above,
This special child will need much love.
His progress may be very slow,
Accomplishments he may not show.
And he'll require extra care
From the folks he meets down there.
He may not run or laugh or play,
His thoughts may seem, quite far away,
In many ways he won't adapt,
And he'll be known as handicapped.
So let's be careful where he's sent,
We want his life to be content.
Please Lord, find the parents who
Will do a special job for you.
They will not realize right away
The leading role they're asked to play,
But with this child sent from above
Comes stronger faith and richer love.
And soon they'll know the privilege given
In caring for their gift from Heaven.
Their precious charge, so meek and mild,
Is HEAVEN'S VERY SPECIAL CHILD.
by Edna Massionilla

Sunday, January 4, 2009

The joy of Uh-Oh, Chelation update, ATEC score, and oh more teeth problems.


When Will was just learning to talk, before regression, I couldn't wait to hear "uh-oh". I actually used to always say "uh-oh, spaghetti-O" because I thought it would be really cute to hear him say that. Well, it didn't happen. Uh-Oh was not one of his words that he used before he lost them all.
To my absolute delight since we started chelation Will has been using "uh-oh" all the time!! In the morning when he realizes that he doesn't have his two favorite cars (Lightning McQueen and Chick Hicks) he looks at me and says "uh-oh" in the cutest little voice imaginable. It is such a great way to start my day!
Chelation is a super pain in the butt. It is 5 days on/5days off of putting a DMSA suppository up his little bootie. I HATE it! We would use the pills but they are not as effective, taste awful, and if he doesn't want to eat then that creates a problem. They cost around $150 for 10 pills so we pretty much need to make sure they get into his system. I wait until he is sleeping and it usually wakes him up but will go right back to sleep. The following day he is super-pooper. I'm talking about 6 poops the first day and the next few days 3+. (Sorry about the TMI but mom's of kids going through Chelation like to know what to expect) He also is getting the Metal Free every night as well as all his other supplements. But if it helps him get all these heavy metals out of his system then it is worth it. We will continue this regimen and then re-test him for heavy metals and see where to go from there.


* My son likes to sit in the dryer, it totally freaks Grandma out!


On a very happy note Will's ATEC score (which stands for Autism Treatment Evaluation Checklist available on the Autism Research Institute website)has gone from a 87 to a 68 (the lower the better) since we started biomedical treatment with Dr. Sloan. The ATEC is a one-page form designed to be completed by parents, teachers, or caretakers. It consists of 4 subtests: I. Speech/Language Communication (14 items); II. Sociability (20 items); III. Sensory/ Cognitive Awareness (18 items); and IV. Health/Physical/Behavior (25 items).
Mind you this is without any ABA and just beginning Floortime Therapy. Also, a little bit of speech and special instruction. We are true believers of Biomedical and now have seen it work first hand.
On an unhappy note, a few minutes ago Will was chewing on something and sure enough it was the crown that we just had replaced last Monday! ARGH!! Not sure if they are going to try to put a third one on or not, all I know is that it will probably cost a lot of money.
So, good and bad, that is what is up with us this week.

Saturday, January 3, 2009

2009

What a year. The end of March was when we realized that something was going on with Will and the official diagnosis was June 25th. It feels like I just found out and that we've been dealing with this for ages, all at the same time.

Dr. Sloan says we are ahead of the game with how early we started treating him and Dr. Dunbar says that based on thousands of children she has worked with she is pretty certain that Will is going to talk. Both of those things bring me comfort.

Kevin and I are taking a parent course in Jan/Feb with Dr. Dunbar at Floortime Atlanta that will teach us how to do Floortime therapy at home. I am really looking forward to the course and learning how to use Will's strengths to help him develop.

I am excited about 2009, being as hopeful as I can that we can recover Will. I enjoyed the holiday and xmas but I am anxious to get back to normal because I think the changes are a little difficult for Will.